Blood Red Days

            Children aren’t supposed to get sick.  Romanticized images picture little darlings running, jumping, climbing, laughing, living life as freely as a butterfly flitting from flower to flower.  Even in prayer, when most solemn, those cherubic faces glow with rosebud color.  So it should be, forever and ever.

            Unfortunately strange diseases invade, causing any possible varieties of illness.  Most we understand.  Tonsillitis, ear infections, colds, cuts, bruises, and even the occasional broken bone fall into that realm.  Kids are susceptible to germs, primarily because they play with “germy” things, and so we expect them to fall ill. But we pray that those times are few and far between.

            When your four-year-old child’s urine turns the color of burgundy wine, however, the only normal reaction is fear.  So it was for my husband and I when it happened for the first time to our six year old daughter. 

            When it occurred, we tried not to panic so as to not alarm our daughter. What we did do was make phone calls followed by tons of doctors’ visits.   We began with our regular pediatrician who thought the bleeding was caused by a bladder infection. The prescribed dose of antibiotics seemed to work.

But then it happened again. More antibiotics were given. And then the same thing, over and over.

 We were referred to a urologist who was used to treating senior citizens who would willingly allow tubes and prodding. He had no experience with a five-year-old.

Our daughter fought him with the strength of an army, clenching shut her legs and refusing to budge. I didn’t blame her. I thought the doctor a little too interested in seeing what was between my child’s legs.

At my insistence, our pediatrician referred us to a pediatric urologist/oncologist.  Imagine the fears those words triggered. Oncology. Cancer. Curable or not? We didn’t know or understand what was happening or what the doctor would do. How he was going to make the determination as to the diagnosis? The person setting up the appointment offered no reassurance, but because the bleeding continued, we went to his office.

By the time we finally got to see him, months had passed. The color of her urine had deepened to a deep, dark red. It was frightening, not only to us, but to our daughter. Even a small child understands that urine is not supposed to be that color.

            For my daughter’s sake, we put on happy faces, attempting to disguise our deep-seated fears.  When she was out of visual range, we allowed ourselves to cry.  Of course, we prayed.

            There were days when her urine was a healthy golden color and so we tried to convince ourselves that she was cured. That the newest round of antibiotics had worked. We wept with joy and gave thanks to the Lord.  But the space between those times slowly shrunk until it was pretty much guaranteed that we would see red, and only red.

            Even the strongest antibiotics had proved to be ineffective, and so the pediatric urologist ordered x-rays to search for the still unknown cause.

            We went to Alta Bates Hospital in Berkeley, California, one of the finest hospitals in the Bay Area.  For the exam, our daughter was placed on a cold, metal table.  She was given huge quantities of liquid to drink.  The x-ray machine was lowered until it hovered above her lower abdomen.  She was told to urinate, right there on the table, in front of five total strangers.  She couldn’t do it and I didn’t blame her.

            They inserted a tube to allow the urine to flow.  Pictures were taken.  We went home and waited, impatiently, to hear the results.  When they came, we were terrified and confused. Because of the way her bladder was constructed, it was unable to fully close.  Surgery was recommended to insert a tube to narrow the urethra.

            Shortly after the recommendation we drove to Children’s Hospital in Oakland, arriving just as the sun was beginning to peak over the hills.  It was a peaceful scene which helped to somewhat ease our nervousness. It was short-lived, however, for immediately after completing the required paperwork, our daughter was whisked away by an efficient, yet friendly nurse. 

            My husband paced the floor of the waiting room, talking to himself.  I prayed, placing my daughter’s life in God’s capable hands. 

            This operation was a success. Her bladder would now allow her to control the flow of urine. However, during the surgery, the doctor discovered that her ureters did not enter the bladder at the correct angle.  Not only that, but the flaps that prevented urine from moving into the kidneys were missing.  Another operation was planned.

            Despite the negative news, my husband and I eagerly took our little girl home, hoping that at least there might be some reprieve from the tinged urine.  It was not to be.

            Within hours after getting her settled, her urine had turned from a healthy golden hue to a blood red, bone-chilling liquid.  Several phone calls later, another trip to the doctor’s was scheduled.  She was again put on a regimen of antibiotics, hoping to stem off any invasion of germs that might interfere with the next operation.

            Good Friday found us, once again, in the waiting room of Children’s Hospital.   My husband paced while I pretended to read.  Both of us turned our hearts over to the Lord, begging Him to watch over our daughter. 

            In the midst of one of many recitations of the Our Father, I felt a gentle touch on my right cheek.  A calm washed over me, settling in my heart.  I nodded, and whispered, “Thanks.”  My eyes filled with tears of joy, and a smile burst through.  I knew, then and there, that everything would be fine.

            When the doctor came to us still dressed in his surgical greens, he was smiling. While he was looking inside our daughter’s bladder, he discovered a blood vessel that was weeping, something it was not supposed to do. He cauterized it, forever stopping the flow of blood into her bladder.

            Because of the severity of the operation, however, she had to spend a week in the hospital.  It was scary for us. Imagine how frightening it was for her, spending nights without her parents nearby. Our sons stayed with a relative so that my husband could go to work and I could go to the hospital.

Every day she got stronger and her urine became clearer.  I gave thanks to the Lord for giving my daughter another day of life.

            Those were trying times, for sure.  I had no choice but to rely on my faith, as even the most highly trained, respected pediatric urologist had had no idea what was wrong.

Even years later, I still believe that the Lord stood by, watching, whispering advice in the doctor’s ear.  How else did he find the exposed vessel, the incorrectly seated ureters, the missing flaps, and the enlarged end of the bladder?

            While the likelihood of her bleeding to death had been slim, she could easily have died of kidney failure.  If we had known about this earlier, we could have acted sooner.  For some reason, the Lord kept her alive long enough for medical science to rise to the occasion.

Faith kept me sane.  Faith allowed me to put aside my fears.  Faith was my constant companion. That operation solved the problem which allowed our daughter to grow up into a college graduate, wife and mother.